Balancing Life with the Word Retarded: Brain, Child Magazine Publishes My Story

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Heard it? THAT word? Retarded. Said in jest or with intent to label and degrade, the word has harsh tones. The language is going through a change. The R Word is no longer accepted as a way to refer to people with disabilities. Yet, the handling of language is a …

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Special Speak: Managing the World of Language

NO! Yes NO Toilet

Commanding the physical world occupies much of my time. Washing hands, cleaning vegetables, vacuuming, picking up clothes, and all day long putting things “just so.” My son and I don’t always see the world in the same way. I’ve got a lot to learn to communicate effectively with him. His …

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The Daily Challenge of Seeing the Good

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I found buckets, gathered towels and told my son not to move. On my hands and knees, I held back a gag that clung to the base of my throat. Hard time to find the good, but it is sanity exercise I cling to like rolling marbles in my hand …

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Finding a Way in the Cold: A Collection of Photographs

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The landscape of cold shifts and changes as much as the blossoming spring. The art of subtlety rules. Looking, waiting, and moving with shadows that duck between and around brilliant light can give some gorgeous shots, perhaps easily missed behind scarfs and fuzzy mufflers. Here are a few photographs I …

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Someday Soon This will be Totally Normal

Role Models Not Runway Models - Runway - Mercedes-Benz Fashion Week Fall 2015

Actress Jamie Brewer, known for her work on American Horror Story, walked the runway at the New York Fashion week. Notice anything? The actress is a gorgeous girl, loves fashion, and can act. Oh yeah, she has Down syndrome. In addition to Jamie’s début, Danielle Sheypuk, modeled at the fashion …

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LOVE All of ME: A Request for Valentine’s Day and Beyond

love all of ME

Every day I get a valentine. My son hands me some sort of lump of love I often never see coming. Without wrappers, void of sugar, free of food dye, he hits me where the heart is. One morning, as I seriously guided my son on the path of getting …

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