The day arrives. The newborn child coos in your lap—her big, broad life on your mind. When will she walk? When will he talk? As a parent with a special needs child, these questions suck….but….what changes? The whole damned game. Find out the hidden secrets things some of us know about parenting children with special n [...]
I never, for an instant, thought of terminating the pregnancy, even when I found problems in the pregnancy indicated a chance of Down syndrome. I never had prenatal testing. But, what would I tell another mother to do if she found out her child had Down syndrome in prenatal testing? The answer is as loaded as the question, and i [...]
One day in a college class, the professor asked us who watched television. A woman a few rows over from me talked with big hand gestures and voiced disdain for the lowly and terrible television. She only watched PBS and inferred those that watched anything else were stupid and beneath gutter scum. I tried to listen but couldnR [...]
Dear Big Stores,
I’m asking for a little help. There are those of us who cannot manage shopping at your stores without great distress. Children with special needs outgrow carts with baby seats; some elderly cannot walk the aisles; some special needs, at any age, may not be able to handle the wheelchairs provided. Caroline [...]
Sometimes my legs won’t go anymore.
Steps. Too many. Too high. Too much.
I want my legs to work. Like them.
But it’s hard.
When I’m tired,
Someone sees me.
When I can’t make things go,
Someone sees me.
They pick me up.
Take me with.
And never. Ever. Leave me behind.
var OB_platformT [...]
Summer brings adventure. Traveling with kids presents challenges. Preparation calms nerves and build excitement. Pack bags with confidence. All children love hitting the road. Whether traveling by plane, train, or automobile, these tips applied to any form of travel, help even us big kids.
This series speaks to the unique obstac [...]
Supermodel Nicole Trunfio breastfed on set because her child was hungry. The photographer took a photo. The magazine published it. Step back. Watch the furry, the worry, the confusion, and dread as the world gasps and figures out how to digest this enormous event. Really?
News flash: baby’s get hungry, a lot. Mother’ [...]
Becoming a parent changed the way I ate. As a mother of a child with Down syndrome, the world morphed into a whole new way of thinking. Jamie Oliver’s got a fantastic video made with Ed Sheeran and featuring other celebrities, bringing awareness to the desperate need we have as a society to change the way we eat at home, in [...]
Instead of a burden, raising a child with special needs is a blessing. Pregnant with my second child, I knew something was different. Not one single test showed signs of Down syndrome. But, something was different. “Your son has Down syndrome,” the doctor said.
“How do you know?” I asked as I stared at the [...]
Spinning. That’s what the brain does after a while. Managing the role of a parent spins one immediately into fears/responsibilities/decisions/actions and the result is an exhausted human with no option other than to scream, hold up a white flag, and collapse with a large tub of ice cream on the couch and settle into a long, [...]