The day arrives. The newborn child coos in your lap—her big, broad life on your mind. When will she walk? When will he talk? As a parent with a special needs child, these questions suck….but….what changes? The whole damned game. Find out the hidden secrets things some of us know about parenting children with special n [...]
When we open our eyes and look around, we see all types. Not long ago, we hid the different and found a backroom to put our challenges in. When we open doors, we become aware. We see. When we see with our eyes, we give room for our hearts to see past the limitations. We’ve all got a job to do. We’ve all got to fly.
I never, for an instant, thought of terminating the pregnancy, even when I found problems in the pregnancy indicated a chance of Down syndrome. I never had prenatal testing. But, what would I tell another mother to do if she found out her child had Down syndrome in prenatal testing? The answer is as loaded as the question, and i [...]
David Bowie, Steven Tyler, Cyndi Lauper, and John Legend are a few of the big names lending original songs to a Spongebob Musical to premier July 3rd, 2016 in the Windy City at Broadway in Chicago’s Oriental Theatre in July 2016. We’re already dancing and singing to Spongebob.
The appeal of Spongebob has me stumped. [...]
Every wondered how to jump in the lake? I watched. I learned. This guy’s an expert.
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Really, I don’t know. I wake up everyday and wonder how to manage. Today, he put his pants on, a wonderful feat, though they were backwards. His shirt too. Didn’t matter, we get excited about these steps, strides.
When he slept in an incubator, I wondered, when will this be OK? I didn’t know then. Genetic defec [...]
We paddled straight into the wind to get to calm waters. Water is relaxing, fun, and full of interesting lessons in how the world works. With a life jacket on at all times, my son loves to test the waters. He looked into the water and poked at the lily pads. I noticed he wasn’t paddling. “Where did your paddle go?R [...]
Sometimes my legs won’t go anymore.
Steps. Too many. Too high. Too much.
I want my legs to work. Like them.
But it’s hard.
When I’m tired,
Someone sees me.
When I can’t make things go,
Someone sees me.
They pick me up.
Take me with.
And never. Ever. Leave me behind.
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We circled a purple flower and stumbled on butterflies at work. They spread their wings. We went to work too. We got our camera and creeped on the grass and hovered in behind the bushes. The butterfly is cool, wings down. We think you’ll like what we found.
We have so many things to keep us busy: therapy, activities, alpha [...]
Appreciating the little and big miracles that happen in life keep the energy flowing. Recounting this story of healing about my kids took education, work, and refusal to buy into mainstream cures. Our choices start seed level change in our conscious, our bodies, and rhythm of our lives.
I am thrilled to bring this story to The M [...]